I was wrong.... his head last time was 13mm off this time his head is 15mm off. The neurologist said it does "look" better because his flat side isn't so flat BUT he has a huge bulge in the right on the back of his head. He says that is could possibly get better on his own and we could chance not helmeting him but it doesn't think it would. So it's kind of a do it now or never type of thing.
I talked to the helmet people yesterday. In Houston we only have the Starband which is not the band I wanted but what can you do? The representative was very nice and was super impressed that I have done so much research on them. Right now we are waiting to see how much our insurance will pay (hopefully some.. I'm praying for 100%- yeah right!). After they talk to the insurance he will be fitted and we will start. I asked how long he thought Jackson would be in it and he said it really just depends on his head growth. He said most kids are in them for 3-6 months.
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So there is it I knew it was coming. I was already for the news. I am ok with it. I really am. Maddie just wanted me to have something to decorate to put on Jackson's head. :)
So now I need help.....Of course I am going to decorate his band!!! Someone suggested Bling Your Band. its a really neat store for decals..but I have to be original. I want to make up my own saying for the back of his band. I have an idea in my head but I want to know your ideas..... Go check out Bling your band page tell her "another day stronger" sent you and tell me what you think!!
Oh I almost forgot.. They weighed and measured Mr. Jackson yesterday....He weighs 17.5pounds (67%) , 26.5 inches long-I'm not sure this is right. He was 26.75 at 4 months (72%), his head is 42.5 (30%) BIG boy!!!
19 comments:
My son had a saying sticker in the back on his helmet that said "I do my own stunts". It was so fun and cute!
I love the blunt your band site but I got out my scrapbooking stuff and rubbed things on my sons. When we got to football season I went in to a shirt shop here in town to buy a decal of our home team to put on it and the lady just gave it to me. I was very touched! If you have problems with the insurance company (they will say it is cosmetic not medically needed) ask for a supervisor and explain the complications it can cause if it is not fixed. I did that and paid $400 for the starband and all of our appointments.....and there were a lot of them!
Sorry, autocorrect....bling your band!
Kelly, I looked at the bling your band page. So super cute. I'm sorry you're having to go through this. Though I know Jackson is not experiencing this, I have a cousin who went through something similar about 48 years ago. No treatments, no bands. His sutures closed too quickly and he has the mental capacity of a five year old. We love him so much! He's 53 now. Sometimes I wonder what kind of treatments are available now that could have kept him from such pain. If I could offer any advice on the bling, don't put your babies name on anything! Especially older children. We just had a terrible tragedy with ten year old Jessica Ridgeway, about an hour north of my house. Kids, not infants, often forget their name is on their backpack, hat or whatever and strangers call them by name, so they must be okay, right? A stranger can also take an identity this way as well. I think he needs some cowboy bling! Cant wait to see what you choose
Hi Kellie ; ) I was the one who recommended coree @ BYB! She is a sweetheart & does such a good job...My son wore the starband as well, and although it was as "pretty to look at" as the DOC band it did an amazing job and his head now @ nearly 2.5 yrs old looks awesome. Lots of luck as you guys embark on your journey, I swear it is way worse on the parents than the babes as far as adjusting ; ) Jackson is a rockstar and will be sooo handsome in his helmet!
I have never commented on your blog before but I couldn't resist this topic. My son Asher had a Starband as well at 6 months old (they don't band until 6 months here). His measurement went from 12 to 4 or 5, I can't remember, in about 10 weeks! We saw fast and beautiful results. He is now 18 months old, still bald and gorgeous! Best wish for you and Jackson as you begin this journey. It won't be nearly as difficult as you're probably imagining. Be prepared, though, for stares and inappropriate questions like "What's wrong with your baby?". It's sad, but believe me, it will happen. I once replied "Nothing. All good mom's use helmets for their children." and also "Nothing. What's wrong with your manners?" Also, I ordered Asher's decals from Little Bumpies. They are cheaper so I could order more. Good luck! I'm sure Jackson will rock it out!
Sorry I can't contribute anything, I just wanted to say how sweet Jackson's head looks from above :) I really like the do, little fella - you're gonna look like such a cute little maverick in your band!
Kellie - I'm a visitor to your blog. My 3 1/2 month old son is just now starting the measuring process for his helmet :( We were so bummed. His head is only 9mm difference right now, but he also has a bulge. Thank you SO much for posting the link to the bling your band! I wanna make him look as adorable as possible :)
I like what you said about Maddie wanting you to have something to decorate :) I saw a helmet sticker on another friend's blog (can't remember which!) but she had one that said " The longer you stare, the cuter I get." :) I'm sure you will come up with something so creative though! :)
I love his hair!
Hi my friend sent me over jackson's head looks almost exactly the same as my son!! we went today for a free assessment and are now waiting for insurance then we will be getting my son fitted for a DOC Band. I'm excited to decorate it lol.
Kellie, I've been reading your blog for some time now. You're so inspiring and real. Thank you for that. Please check out www.facebook.com/thecricketscorner Although I've never decorated a helmet before, maybe I can help. :) I have a vinyl business and would love to help you decorate sweet Jackson's helmet.
Sincerely,
KellyAnn
One last thing, if you decide to take the offer, please contact Bling Your Band via email at coree@blingyourband.com and let her know that you are the one that I, Tasia Davis, gave my offer too. I have already emailed Ms. Coree and she is ready to extend the offer to you guys! Enjoy!!
Tasia
p.s...please dont make this email visble due to Ms. Coree's email address listed! Thanks! ;)
My daughter had that exact mold, we just put something to block her from turning her head left and she was stuck turning it right. We also put a mirror, black and white images, fun things on the right hand side to convince her to look right. We were very proactive from 2 months though, so by 4 months it went away.
We are in Houston, Texas and we used TMC Orthopedic. They were amazing and so nice. They have many locations. Email me if you'd like more info bellisognigifts@gmail.com
Kelly- Just heard of this family from my sister in law (she is friends with this family). This family lost a baby at 41 weeks pregnant and is 20 weeks pregnant with another baby that is expected to die because of Trisonomy 18. Please keep them in your prayers. Here is their blog: http://www.alittlebirdie.org/83
Kellie, if you don't choose cowboys, then puppies would be so, so cute for your little guy!
Allison
"Bull Rider in training"......U can never be too ready.
U have done great with his therapy. Good luck with everything. Ur an awesome mother and I'm sure James is a great dad.
I love that Bling your Band page! Too many cute choices. How will you ever choose?
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