(Photo by Robyn's Photography)
Levi
was born 11.14.2011 with End Stage Renal Disease. This means that his
entire renal system (bladder, kidney, ureter and urethra) don't work
together like they should. He also has just one kidney, and it has
hydronephrosis, the swelling of the kidney due to urine backup. It also
operates with stage 4 Vesicoureteric reflux, this is the back flow of
urine from the bladder back up to the kidney. Because of all of this
Levi takes a bunch of medicines each day and requires a lot of doctors
visits, a feeding tube, blood work, and surgeries. Eventually, he will
have to have a (couple) of kidney transplants in order to survive into
adulthood.
12 comments:
Oh my goodness, what a sweet, sweet little baby. Prayers coming his way...and I'll have my small group put him on their prayer list. (Makenzie and Jackson as well)
praying for that sweet boy. My oldest suffers from that same reflux issue (stage 3) and it's tough enough on its own to deal with. I hope he is doing better soon!
Sending lots of prayers!
I am so sorry! I will be praying for this sweet baby!
Will def keep lil Levi in my prayers. His 1st Birthday is coming up, hope he has a blessed one!
I am praying for Levi. We know kidney disease and a baby here :( although right now I am thankful for what little we are dealing with compared to all Levi and his parents are.
Here is some hope for Levi and his parents. It sounds like Levi has exactly what my sister in law had... she is 35 now and still not needing a transplant through some surgery and careful monitoring ect... she is happy and as healthy as she can be. She works, she has 3 children ect... she is a true inspiration. Her renal failure wasn't at birth. She ended up with an infection because of all of this when she was just a small infant and failure to thrive that is when they found everything the one kidney the ureter problems, the renal failure... she had emergency surgery and battled things all of her childhood. Like I said though she is 35 years old and happy and healthy and is doing well after another surgery this year that took out part of her ureter and reattached it and then moved her bladder. Her blood pressure is better, her renal function is actually way better than ever before in her life. Right now her outlook looks good when just before the surgery the surgeon had said this was just going to prolong when she'd need a transplant by a bit. It looks like it prolonged it ALOT! I hope this is the case for Levi too :D
I am praying for Levi. We know kidney disease and a baby here :( although right now I am thankful for what little we are dealing with compared to all Levi and his parents are.
Here is some hope for Levi and his parents. It sounds like Levi has exactly what my sister in law had... she is 35 now and still not needing a transplant through some surgery and careful monitoring ect... she is happy and as healthy as she can be. She works, she has 3 children ect... she is a true inspiration. Her renal failure wasn't at birth. She ended up with an infection because of all of this when she was just a small infant and failure to thrive that is when they found everything the one kidney the ureter problems, the renal failure... she had emergency surgery and battled things all of her childhood. Like I said though she is 35 years old and happy and healthy and is doing well after another surgery this year that took out part of her ureter and reattached it and then moved her bladder. Her blood pressure is better, her renal function is actually way better than ever before in her life. Right now her outlook looks good when just before the surgery the surgeon had said this was just going to prolong when she'd need a transplant by a bit. It looks like it prolonged it ALOT! I hope this is the case for Levi too :D
Praying for this sweet baby. I hate seeing a little one in pain.
I will certainly keep baby Levi in my prayers!
Sending lots of love, prayers, and support.
Sending LOTS of Prayers!!
I'm so sorry to hear this!!! :( I have a 13.5 month old daughter, also with solitary kidney & hydroureteronephrosis (kidney & ureter swelling). But she is not nearly in the condition, that Levi is in! I will keep him in prayer, my heart def hurts for them... :(
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